Thank God for my DR

Posted by: Sarah Trost in Being Mommy, Family, health, stillbirth/pregnancy loss No Comments »

I went to my post surgical checkup today. Dr Zepeda once again said that my remaining fallopian tube and ovary looked great and my uterus healed very nicely from the rupture. He gave no concerns about another pregnancy. Paul asked about conception during chemo and he said that was just fine, although chemo may cause infertility, it will not cause birth defects in the baby! I know there’s a lot of men out there who are told to wait 2 years after chemo is OVER before trying to have another child. His oncologist ALSO said that chemo is not a concern to him during conception and my OB said he’s known that oncologist for 30 years, and he’s known to be the best in the field (which BTW my OB and our chiropractor are also well known and all three teach in medical schools.)

You could tell that Paul was very relieved, especially that my uterus looks great. There’s a lot of scar tissue around the bladder which is typical following multiple cesareans. I’ll have to remember discussing silicone film in the future to help prevent adhesions after another cesarean.

Ultimately I’m still praying that God heals me and I can have a natural delivery. I’m not sure that God will bless us with another baby, but if He does our youngest will be 3 1/2 or older. After having ‘stair step’ deliveries, that will be a very different experience!!

This has been such a hard year on all of us. I am just begging God for a fantastic 2010. We’ll see what happens.

If you Want me To

Posted by: Sarah Trost in stillbirth/pregnancy loss, Uncategorized No Comments »

The pathway is broken
And The signs are unclear
And I don’t know the reason why You brought me here
But just because You love me the way that You do
I’m gonna walk through the valley
If You want me to

Chorus:
Cause I’m not who I was
When I took my first step
And I’m clinging to the promise You’re not through with me yet
so if all of these trials bring me closer to you
Then I will walk through the fire
If You want me to

It may not be the way I would have chosen
When you lead me through a world that’s not my home
But You never said it would be easy
You only said I’d never go alone

So when the whole world turns against me
And I’m all by myself
And I can’t hear You answer my cries for help
I’ll remember the suffering that Your love put You through
And I will walk through the darkness
If You want me to

Cuz when I cross over Jordan
Gonna sing, gonna shout,
Gonna look into Your eyes and see You never let me down
So take me on the pathway that leads me home to You
And I will walk though the valley
If You want me to

Yes, I will walk through the valley
If You want me to


Raising a large family with disabilities

Posted by: Sarah Trost in Aspies, Being Mommy, doctrine and Biblical truths, health, Sovereignty of God No Comments »

I won’t fake it.  It’s not easy being a mom who is also autistic.  It’s even harder being a mom who is autistic and raising children who are on the autism spectrum.  Add to that a mom who is autistic, married to a man with cancer and undergoing chemotherapy, raising children on the autism spectrum, while undergoing miscarriages and surgeries.

Yet, I find joy in serving my family.  Not always.  I do grumble occasionally.  But I love my family immesly.

I realize that my husband would likely do better with a wife that is more self sufficient.  After all, I can’t seem to remember to brush my teeth or take my vitamins without his pokes.   But he loves me and doesn’t seem to mind (most of the time) helping me in my disabilities.  His feelings aren’t hurt when I tell him I can’t handle being touched that day.  He notices when I am overwhelmed and need some time in a quiet space (who doesn’t need that, even without a disability!)

I so desire the ability to give him a perfectly orderly and quiet environment where he can recover and heal.  I’m sure he desires that as well, yet, he recognizes that I have some limitations.

Not only do I feel that I fail my husband in certain areas, but I think I fail my children.  I can’t seem to find a way to rally them up and get them to joyfully and willingly obey.

Still, I am pleased with God’s direction and immeasurable strength and peace He has provided me.  Not that I always illuminate with peace, mind you, but it is there for the taking.

For instance, God directed us towards the gluten free diet.  Our lives are completely different thanks to this ‘simple’ change in diet!  I find that tea has helped give me some calm during the crazy parts of the day like after lunch and dinner, and seems to be helping Paul as well.  Most of all, a grasp of God’s sovereignty carries us through any trial that comes our way.  Again, not that we always react in faith!  But God is unboundingly merciful to us in such times of distress.  Ultimately, we have peace in the midst of a raging storm.

Yet another loss

Posted by: Sarah Trost in Being Mommy, Family, health, stillbirth/pregnancy loss No Comments »

I had emergency surgery for an ectopic pregnancy yesterday. It wasn’t in my liver (thankfully, as I was fearing that) but in my right fallopian tube. It was the twin to the baby I miscarried several weeks ago. The Dr said that my other ovary and tube look wonderful, my rupture has healed well, although I have a lot of scarring where the bladder is.

My dr was completely shocked as well as the NP who did my earlier scans and the conferring OB. Everyone were totally blown away. I wasn’t, I’ve felt from the beginning I had twins and one was ectopic. They would have never caught this one but I have been terribly sick the last three weeks and have been pushing for answers to why I feel this way. I thought it was a concussion and went to the ER who released me because of a positive pregnancy test and no ultrasound. Two days later I had an ultrasound and more blood work. Nothing in the ultrasound, and blood work showed a decrease in HCG as I had expected since I had miscarried weeks earlier.

I called several times but they never got a message to the OB and A WEEK LATER my OB called very concerned about my blood work and wanted to see me ASAP in level 4 (?) ultrasound. They had no appointments available and said they could see me in a week. I insisted that it was imperative that I get seen sooner and they said I have an apt IN DECEMBER. So I finally had to settle for a week, which was Wed. I went in for the ultrasound. The tech was very concerned and didn’t say much but spent a long time doing the ultrasound. She told me
to go immediately to my DR office ( which was in the same department.)

I did and was told GO HOME. He will call me in a few days (like he did with my lab work??) I refused to go home. But he’s not here, he’ll be back in a few hours, it’s his surgery day. I insisted that they get someone to look at my ultrasound. I overheard them talking to the tech who was clearly worried and said she couldn’t see the baby. Since we weren’t looking for a baby specifically (the ultrasound order didn’t say why I was there) I knew that something was clearly wrong.

So they called my OB and read to him what the ultrasound tech wrote in the report, that there was a large mass near my right ovary. They didn’t tell me this, but came and told me that they read the report to the OB while he was in surgery and he told them to not let me leave. So I waited several hours and he came in with a conferring OB who reviewed my previous ultrasounds and records. They were astounded and as it was too late to get me into surgery scheduled me for first thing the next morning. (I left at 4:30 AM for the hospital.)

When they opened me up my tube began to rupture. I bled a lot. They almost had to give me a transfusion. My BP went very very low and my hemoglobin is low (I’m taking iron for it.)

I am so thankful that I hit my head and pursued the strange symptoms and pushed for the ultrasound and insisted on staying until someone looked at my ultrasound. Otherwise, I would have ruptured at home, 45 minutes from the nearest hospital and alone (my parents were going out of town and hubby works an hour away.) I could have died. But God is sovereign and merciful and He protected me from death.

Another set of twins with Jesus. I was thankful that there was no
heartbeat as I couldn’t make that decision to take the baby out, even if it threatened my life, if it meant directly killing the baby. It’s been several months that I felt strongly I would have an ectopic and had prayed fervently that if that were to happen that God would take the baby home to be with Him before the surgery. His peace was so strongly upon me as I was wheeled into surgery.

Today Paul has cried a lot. It’s very painful for him to cry since the chemotherapy causes tremendous pain to his face. But he is so very sad that our four living girls (ages 2,4,5,6) have experienced so much loss lately. We all are.

Sarah,mom to 4 girls on Earth Kailey Faith, Bethany Hope, Taryn Grace and Kaitlyn Joy and possibly 8 treasures in Heaven

missing Allanah Charity (Kailey’s twin lost at 9 weeks in 2002)
Thomas (Benjamin’s twin lost at 6 weeks in 2008)
Benjamin Isaiah stillborn at 40 weeks on March 8,2009
Emma Liberty miscarried at 7 weeks October 7, 2009
Emma’s twin Elizabeth Shalom ectopic pregnancy removed Nov 12, 2009
three possible (unconfirmed) miscarriages in 2006-2009

Held

Posted by: Sarah Trost in Being Mommy, QF, Sovereignty of God, stillbirth/pregnancy loss No Comments »

Held by Natalie Grant

Two months is too little
They let him go
They had no sudden healing
To think that providence
Would take a child from his mother
While she prays, is appalling
Who told us we’d be rescued
What has changed and
Why should we be saved from nightmares
We’re asking why this happens to us
Who have died to live, it’s unfair

[Chorus]
This is what it means to be held
How it feels, when the sacred is torn from your life
And you survive
This is what it is to be loved and to know
That the promise was when everything fell
We’d be held

This hand is bitterness
We want to taste it and
Let the hatred numb our sorrows
The wise hand opens slowly
To lilies of the valley and tomorrow

[Chorus]
This is what it means to be held
How it feels, when the sacred is torn from your life
And you survive
This is what it is to be loved and to know
That the promise was when everything fell
We’d be held
[Bridge]
If hope is born of suffering
If this is only the beginning
Can we not wait, for one hour
Watching for our savior
[Chorus]
This is what it means to be held
How it feels, when the sacred is torn from your life
And you survive
This is what it is to be loved and to know
That the promise was when everything fell
We’d be held
We’d be held

This is what it is to be loved and to know
That the promise was when everything fell
We’d be held

This is what it means to be held…..

At the Zoo

Posted by: Sarah Trost in Being Mommy, Family, health, stillbirth/pregnancy loss No Comments »

photo_116_20080825

My good friend and I are always pregnant together, except my #2 girl. She wasn’t pregnant then. But when she is pregnant, I am pregnant. She had three girls and I had four so we were praying for boys. BOTH needed to be boys. And sure enough, they were! But then Benjamin was stillborn and Jett was not. It was a close call for him, though. Homebirth, short chord wrapped tightly around his neck AND torso if I remember correctly. Very close call. They had to resuscitate him I think. But thankfully the midwife is very experienced and Jett did just fine.

I hadn’t seen him yet. Last week we met at the zoo. He looks just like his sisters, a little Ledman boy if you ever saw one. The stroller she used wasn’t working well for him and I offered that he could ride in mine since our 2 Yos were running around together. I couldn’t help but think that it was supposed to be Benjamin in that stroller. Our beautiful little girls running delightedly around the zoo and our sweet little boys being carried in slings or pushed in the strollers. As the girls ate next to the sea lions we would have nursed the babies. And yet Jett (thankfully) was here and Benjamin was not.

We were looking at the primates and my friend asked me if I was ok.  Yes, I was.  No, I wasn’t.  How do you reply?  I’m never completely ok.

The new stone paving leading into the zoo can be engraved (donations)and I had planned to do that with some of the money in his memorial fund. I couldn’t help but try to read all the ones that have been engraved, my eyes were glued to them on the way in and on the way out. You can get 1,2, or 4 engraved at I think $100 a brick. Man if I had $400 I take up a whole square!!

We haven’t ordered Benjamin’s headstone yet but it’s picked out. We need to decide what photo to use and what epitaph. I’ve had a hard time getting hubby to sit down and do it. Understandably, it’s a difficult thing to do for sure.

I think we’ll go to the cemetery today.

Posted by: Sarah Trost in Uncategorized No Comments »

This is what we are doing this Christmas in lieu of gifts. Please go to www.gfa.org for a catalog, a church gift packet which includes a DVD, bulletin insert and catalog or view their online catalog. Our girls just love picking out gifts in the catalog and talk about it well into the next year.

emotions cloud logic

Posted by: Sarah Trost in Being Mommy, doctrine and Biblical truths, Sovereignty of God No Comments »

I was reading an interesting thread in a friend of mine’s journal on this topic. He was describing a systematic view of his own morality, how he lives his life and weighs good from bad (well, that’s an overly simplistic view of it but you get the idea.) A reader replied that she finds most people cannot express what they believe, probably because they’ve never really thought about it. When they get upset at ‘opposing’ viewpoints they really speak from their emotions and not from their researched or truly thoughtful beliefs. This led me to reply:

yes, I would agree with your experience with others and their concept of their own beliefs (or lack thereof.) It reminds me of an experience in college (several actually but one in particular stands out.)

I raised my hand and responded to the professor’s statement “By that train of thought, Satan and man are greater and more powerful then God.” Since it was a Bible college murmurs erupted and my classmates became quite upset. Prof considered it for a moment and said “Yes, you are correct.” The protests grew louder and he explained why his (and most of the students there) theology, if considered purely logically, would (should) lead to the belief that people and Satan are greater then God.

Of course because they believed A but not B their emotions clouded their logic (or maybe they lacked it entirely.) They were completely unable to explore what A meant to B and have a rational discussion on it. Students actually WALKED OUT!!

BTW, despite my unwillingness to swallow everything as taught, my professors thoroughly enjoyed having me in their classes. Apparently they valued students who thought for themselves and I chose to base my beliefs on logic and Scriptural exegesis rather then deciding what I believed FIRST and THEN looked for Scripture to back up my claims.

I sum up my beliefs regarding how to live in this world in one word- respect. I was trying to simplify our house rules and realized that I teach my girls so much that perhaps it was hard for them to remember absolutely ever rule I have thrown out there. So I told them that if they lacked respect for their possessions, siblings, parents, pet, ect then it would break a rule. If they jump on the sofa then they have no respect for the sofa. If they draw on the walls they disrespect the walls (or the parents who have to clean up the mess.) Respect is key to living rightly towards those around us. If we sin against God, then we are also not showing respect to God. This is of course overly simplistic when laying our your beliefs, but works wonderfully in child training.