why it’s not the same thing

Posted by: Sarah Trost in autism/asperger's, Family, health, Today in the News No Comments »

A good friend of mine suggested that it’s a good thing for AS/ASD to be not so widely diagnosed because the extremely wide spread diagnosis of ADD/ADHD and other disorders and over medication has become an overwhelming concern and problem to many (I have read that most children in foster care are taking at least three psychiatric medications for PRIMARILY ADD.)

I completely agree that this is a problem that needs to be addressed and a solution found. However, AS/ASD is more likely to be under-diagnosed, and typically unmediated. Here is the reply I sent to her.

AS and ASD have no common medications prescribed because there is nothing recommended specifically for AS/ASD. Children and adults on the autism spectrum may be given something for anxiety, OCD, PTSD, insomnia, ect but those are independent of the autism diagnosis, considered to be comorbid syndromes. Medical insurance does not typically pay for anything related to AS/ASD such as speech therapy, occupational therapy, or behavioral therapy because it’s not considered a curable disorder. However, with a diagnosis, children and adults may qualify for special services through the schools and colleges (such as speech and OT, ABA or other therapies) and accommodations (like a quiet place to test with extra time, a special aid, ect.) They may also qualify for Medicaid and SSI, which helps the parents as well as the children with therapies and medical bills. Most on the spectrum are unable to support themselves, so SSI is very helpful for that. ASDs come with all kinds of health issues as it is strongly linked to auto immune disorders. The body begins to attack itself. Candida, food sensitivities ect can be very costly. As it is a neurological disorder, epilepsy and other disorders may also affect the person. A child or adult with autism who gets SSI will get also Medicaid. There’s also respite care for parents to get a babysitter to help care for their child with special needs while they get a much needed break.

There are DAN! doctors (Defeat Autism Now) who understand nutrition and all the ins and outs of ASDs and while there aren’t very many of them, there are a lot of people helped by them. Early intervention and nutritional help ect is out there for those who get a diagnosis. Also, without a diagnosis those on the autism spectrum are very badly treated because they are just ‘difficult’ or ‘morons’ or ‘lazy’ instead of people with a disability who may need extra help. Imagine if a child is never diagnosed as deaf. What would his parents think of him? How would others around him treat him? How would he feel? He would certainly never be taught sign language, so he would be unable to express himself. It also leaves parents helpless to know what to do with their child. In the course of ASDs, a diagnosis is definitely very helpful. In fact, if we didn’t know that Kailey and I have AS our lives would be much worse now. I wouldn’t even have them on a gluten free diet and it’s very possible that Bethany and Taryn wouldn’t be talking. I may have continued vaccinating Kaitlyn, and who knows what she would be like now. But with the new diagnostic criteria, I don’t think we’d be diagnosed. We don’t actually have the official diagnoses as although we could have received it easily enough I chose not to because I thought that could come later if need be. Now, with the new diagnostic criteria, that might not be possible.

An excellent blog on a child with AS that was not diagnosed until later is here (if you can view it through mamapedia, if not let me know and I can copy it.) http://www.mamapedia.com/voices/bright-child-with-asperger-tick-s I’m sure there are plenty of responses of similar stories there.

Act Now!!

Posted by: Sarah Trost in Aspies, Being Mommy, health, Today in the News No Comments »

As many of you may know, they have been working on updating the DSM-IV, and had talked of putting Asperger Syndrome and PDD under the ASD umbrella diagnosis. Well, that had a good possibility of helping more aspies and those diagnosed with PDD, although perhaps confusing the lay people who really don’t know much about ASDs.

They are definitely doing such, but I’m now afraid that the change is actually going to hurt those with AS and PDD and perhaps even those who have classic ASD tremendously. The reason is because the diagnostic criteria is possibly being narrowed so much that the number of those diagnosed in the future will be much fewer and those currently diagnosed may loose their diagnosis. Fewer diagnosed means fewer will receive help that they may desperately need in school, with health and psychiatric care, and other services provided through private and state programs.

In the DSM-IV the diagnostic criteria for AS currently says

Asperger’s Disorder

A. Qualitative impairment in social interaction, as manifested by at least two of the following:

(1) marked impairment in the use of multiple nonverbal behaviors such as eye-to-eye gaze, facial expression, body postures, and gestures to regulate social interaction

(2) failure to develop peer relationships appropriate to developmental level

(3) a lack of spontaneous seeking to share enjoyment, interests, or achievements with other people (e.g., by a lack of showing, bringing, or pointing out objects of interest to other people)

(4) lack of social or emotional reciprocity

B. Restricted repetitive and stereotyped patterns of behavior, interests, and activities, as manifested by at least one of the following:

(1) encompassing preoccupation with one or more stereotyped and restricted patterns of interest that is abnormal either in intensity or focus

(2) apparently inflexible adherence to specific, nonfunctional routines or rituals

(3) stereotyped and repetitive motor mannerisms (e.g., hand or finger flapping or twisting, or complex whole-body movements)

(4) persistent preoccupation with parts of objects

C. The disturbance causes clinically significant impairment in social, occupational, or other important areas of functioning.

D. There is no clinically significant general delay in language (e.g., single words used by age 2 years, communicative phrases used by age 3 years).

E. There is no clinically significant delay in cognitive development or in the development of age-appropriate self-help skills, adaptive behavior (other than in social interaction), and curiosity about the environment in childhood.
F. Criteria are not met for another specific Pervasive Developmental Disorder or Schizophrenia.

The new proposed revision/criteria for DSM-V will say

Autism Spectrum Disorder

Must meet criteria 1, 2, and 3:

1. Clinically significant, persistent deficits in social communication and interactions, as manifest by all of the following:

a. Marked deficits in nonverbal and verbal communication used for social interaction: (and what determines that something IS a ‘marked deficit?” People can be very flexible and learn, even those on the autism spectrum.)

b. Lack of social reciprocity; (so, if you can take turns in a game or conversation, you aren’t autistic?)

c. Failure to develop and maintain peer relationships appropriate to developmental level (does that mean that if you have a friend you aren’t autistic?)

2. Restricted, repetitive patterns of behavior, interests, and activities, as manifested by at least TWO of the following:

a. Stereotyped motor or verbal behaviors, or unusual sensory behaviors

b. Excessive adherence to routines and ritualized patterns of behavior

c. Restricted, fixated interests
3. Symptoms must be present in early childhood (but may not become fully manifest until social demands exceed limited capacities)

Condensing the criteria may make things simpler, but it certainly excludes many who are on the spectrum. This is horrible! Something should be done! And something can be done, they are asking for comments on the proposals. I know of no other time when health care professionals have actually asked for the public to give such input, so I’m hoping that people will do so in the droves.

If you have the time and inclination, please do say that while including AS and PDD under ASDs, limiting the diagnostic criteria so severely will seriously harm those on the spectrum who may be undiagnosed and possibly even those who have already been diagnosed and limit the amount of help they will receive. You will need to register but it was simple and then you can comment here

sign the petition!

Posted by: Sarah Trost in Being Mommy, Today in the News No Comments »

Medicaid no longer wants to pay for birthcenters! While I am not on Medicaid nor can I use a birth center, this is an important issue facing many women! Read other messages like mine or sign the petition.

I had preterm labor with my first child and although it was stopped, they did so many unnecessary interventions which caused the early delivery of my child four weeks later via c-section. If I was under the care of midwives in a birthing center things wouldn’t have happened the way they did. My water would not have been broken by a dr at 30 weeks, I would not have had a surgical delivery, and my baby would not have spent 2 weeks in the NICU. Not only did this have lasting affects (and prevent me from having a birth center delivery in the future because of my now scarred uterus) but it cost the state a whole lot more then it should have! Please reconsider keeping birth centers on the provider list- they provide better births, lower c-section rates, and will save the state money. In fact, in low risk pregnancies I feel it should be required that all medicaid patients see a midwife, as they do in the UK.

Sincerely,
Sarah Trost

To Vote or Not TO Vote

Posted by: Sarah Trost in Today in the News, Uncategorized No Comments »

I hate the phrase to vote for the lesser of two evils. I despise it. I don’t want to vote for ANY evil. I don’t care if it’s the ‘responsible’ thing to do. So call me irresponsible- but to vote for someone you STRONGLY do not agree with (and if you haven’t thoroughly researched it you can’t possibly know) because he is the ‘lesser of two evils.’

For those of you who do this, you repulse me. Stand by your convictions. Your vote or lack there of WILL NOT PUT SOMEONE ELSE IN OFFICE as what is meant to be will be. Vote your convictions. Maybe if more people voted their convictions this world would be a different place. Most people I have talked to say they don’t like either Obama or Mccain but will vote for one of them because to do otherwise would throw their vote to the ‘wrong’ candidate.

VOTE YOUR CONVICTIONS AND YOU MIGHT BE SURPRISED.

OK, so I know that the electoral college is a key part of this issue but if their vote is all that matters, VOTE YOU CONVICTIONS. Come on. Do it for yourself. Do it for you country. And in the end, what will be will be. You can’t change the outcome, all you can change is your own actions.

This post might incite some flaming but so be it, because I say and do as I am convicted, not based on what others think!

Posted by: Sarah Trost in doctrine and Biblical truths, Family, Today in the News No Comments »

I’m alarmed at how many Christians are actually defending The Golden Compass. It’s worse then Harry Potter. They even have on the official website a questionnaire to discover what your ‘doemon’ is. Yes, that is a British spelling of demon. In the story people have a kind of spirit guide/their spirit that walks around outside the body in the form of an animal. This is called a daemon.

I have read Christians online who say that the email rumors are not true, yet snopes.com (a secular internet rumor/urban myths dispeller website) says that they are.

Supposedly, the author wants to ‘kill God in the minds of children’ and that in one of the books in the series Adam and Eve do actually kill God, also called Yaweh.

I know one movie I WON’T be seeing…

so, what does this make me?

Posted by: Sarah Trost in Today in the News No Comments »

I don’t put my hand over my heart OR say the national anthem…people sure can be judgemental.

http://blog.washingtonpost.com/fact-checker/2007/11/obama_nabbed_by_the_patriotic.html

very interesting

Posted by: Sarah Trost in Submission, Today in the News No Comments »

I have debated to myself personally the ethics of wearing a wig AS a headcovering. In other words, my head is covered so I am following 1 Cor 11 and my hair is covered, thus I am being modest as only my husband sees my hair. I have a few problems with this. So, I looked it up on google and found this.

Apparently I’m not the only one questioning. And beyond that, some of the hair was harvested during Hindi temple rituals. Even the Jews would have to question that one (and they did!)

The Rabbinical council ruled the Indian made wigs are banned. Many women began covering in snoods and running to stores to buy synthetic wigs while burning those made in India. Some held onto the banned wigs “You have to hope whatever you have is good, otherwise you put a thousand dollars in the garbage,” said a woman named Mindy, who declined to give her last name for fear of what her father-in-law would think.

The issue had come up several years ago, said Rabbi Yisroel Belsky, a leading authority on Jewish law for the Orthodox Union in the United States, but was resolved without a ban. He said it appeared that practices in the Hindu temples where the hair of Indian women is cut might have changed, prompting the new ruling…One of the difficulties, he said, was discerning just what the Hindu hair-cutters had in their minds when they made their offerings, because that had a bearing on whether their acts were idolatrous.”

Ah, so it was OK then but wrong now just because of the changed ritual? I doubt it could have changed that much. And why in the world would the woman’s thoughts have anything to do with it? Sounds to me like he’s trying to justify sin. Or perhaps he profits from the wig business. Or he has a wife who likes her wigs and he likes his money and doesn’t want to part with thousands more dollars for new wigs.

“Mrs. Klein, 48, was picking out a new snood. She said she wanted to hear more from the rabbis before going back to her wigs. “I will be back in a wig once I know what the rulings are,” she said. Fortunately, she said, she did not have to go to Manhattan yesterday wearing the headgear.

“I would look funny,” she said. “One of the goals of modesty is to blend. When you wear a snood on the subway, you never blend.”

On a blog I read it was explained that Jewish women feel pressured to make their hair conform to the Disneyish beauty of society.

Now it comes down to the real reason- one of the big reasons I’m against the wigs in the first place. Vanity vanity all is vanity.

S

Bush is a universalist!

Posted by: Sarah Trost in Today in the News No Comments »

http://www.whitehouse.gov/news/releases/2007/10/20071005-5.html

Main point from interview –

“Q But I want to tell you — and I hope this doesn’t bother you at all — that in the Islamic world they think that President Bush is an enemy of Islam —

THE PRESIDENT: Sure.

Q — that he wants to destroy their religion, what they believe in. Is that in any way true, Mr. President?

THE PRESIDENT: No, it’s not. I’ve heard that, and it just shows [sic] to show a couple of things: One, that the radicals have done a good job of propagandizing. In other words, they’ve spread the word that this really isn’t peaceful people versus radical people or terrorists, this is really about the America not liking Islam.

Well, first of all, I believe in an almighty God, and I believe that all the world, whether they be Muslim, Christian, or any other religion, prays to the same God. That’s what I believe. I believe that Islam is a great religion that preaches peace. And I believe people who murder the innocent to achieve political objectives aren’t religious people, whether they be a Christian who does that — we had a person blow up our — blow up a federal building in Oklahoma City who professed to be a Christian, but that’s not a Christian act to kill innocent people.”

Remembering 9-11

Posted by: Sarah Trost in Today in the News No Comments »

Where was I on 9/11?  I was getting ready for work and sat down to eat breakfast and catch a few minutes of something on TV.  The first plane had just hit.  I was not surprised.  I knew it was a terrorist attack.  The second plane hit.  I felt little emotion other then real concern for all the people trapped.  Then they said that the Pentagon was hit and the White House had smoke rising from it.  Then I was VERY worried.  It was a full scale attack!  Still, I left for work as usual.

During naptime mothers began to arrive to pick up their children.  They were crying and terrified.  I had heard the White House was NOT under attack and for the most part felt nothing.  But these women were really very scared.  They told their babies “I know you don’t understand right now what is going on, but in a few years I will tell you.  You will understand, and you will mourn with the rest of us.”  Almost all the 165 children were picked up early that day, by parents who were afraid the day care was going to be bombed, by parents who were too upset to work, by parents who personalized the situation way too much.  It was so strange to me.

I will never forget 9-11, none of us will.  But more then the crumbling buildings and dying people, what stands out most in my mind are those who were left behind.  Those who knew no one injured or killed in the attack, but still hold onto it as though their spouse, their child, their life was snuffed out in those few hours.  It’s beyond empathy.  It’s beyond concern for our nation.  It’s some strange form of idolatry- worshiping fear, worshiping the fallen, worshiping the heroes, worshiping the famous.  It’s part of our pop culture, I guess.  It’s not something I really understand.

Call me insensitive if you want, but that is what it was like for me, on 9-11.

I fail to see how this fits in collegiate classes

Posted by: Sarah Trost in Today in the News No Comments »
http://www.sermonaudio.com/new_details.asp?ID=24303 Years after creating a smattering of gay-related classes, more than two dozen American universities are now offering full-fledged minors in gay studies and expanding the field to include disciplines across the college curriculum.

Issues such as same-sex marriage and gays in the military have fueled interest in the programs, which have been established, among other places, at Ivy League institutions Yale and Cornell and DePaul University in Chicago, one of the nation’s largest Catholic schools.

At least 30 public and private colleges now offer multidiscipline minors in gay studies, the majority of them started in the last three years. Another 16 schools let undergraduates earn certificates or pursue concentrated studies in gay topics.